KARACHI: The first case of a child suffering from haemophilia and heart disease has come forth. The 18-month-old child is suffering from double pain. Hemophilia Muhammad Ahmed suffers from a complex congenital heart disease known as TOF, Tetrology of Fallot, as well. The parents have appealed to philanthropists for help in providing treatment to their only son.
According to details, Saman Afif, a resident of Gulistan-e-Jauhar, along with her 18-month-old child and husband, Afif Ahmed, has reached the treatment centre of Haemophilia Welfare Society in Karachi for the treatment of her child.
Addressing a press conference at the centre, along with President Haemophilia Welfare Society Karachi, Raheel Ahmed, and haematologist Dr Munira Burhani, she said that her son Mohammad Ahmed was suffering from a congenital heart disease called TOF, Tetrology of Fallot. Within a few months of birth, we learned that he had haemophilia, a bleeding disorder.
Mohammad Ahmed has four heart defects. Doctors will operate on him in three stages. The mother said that the child’s health suddenly deteriorated; he stopped breathing and fainted.
Saman Afif appealed to philanthropists to help save her only son Muhammad Ahmed.
The mother said that the family had spent whatever money they had with them.
Moreover, Founder President, Haemophilia Welfare Society Karachi, Raheel Ahmed, while talking to the media, said that Muhammad Ahmed would have three operations in four years.
He said that the complete treatment of Mohammad Ahmed would cost around PKR 12.5 million, adding that only injections of Factor-9 will cost more than PKR 10.04 million.
Raheel Ahmed said that the Haemophilia Welfare Society would provide anti-haemophilia Factor 9 injections worth PKR 2 million with its own funds.
He further said that it is impossible to manage the amount required for the treatment without philanthropists’ help.
Dr Muneera Burhani, a haematologist, said that the affected child needs a hospital where all the departments are available for treatment during the operation, and it will be a big challenge to stop the bleeding after surgery.
The presser was also attended by the child’s father, Afif Ahmed, General-Secretary, Haemophilia Welfare Society, Shahid Dawood, and Fakhar Alam Zaidi.